Eden's preliminary tests came back showing that she has Metachromatic Leukodystrophy. There is no treatment, just supportive care. Most children don't live past 5 yrs old. They sent off the tests to a better lab to get their opinion before giving her an official diagnosis.
Tomorrow she has surgery to put in her gj tube. She won't be able to eat for 2 days, but looking at her new belly, I'm not as concerned. She was 9.3 kg today!!! More than she has ever weighed!!!
I'm trying to add a video of her giggle. It's soooooo precious!!!
Please keep praying!
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LOVE her giggle!!!! She is soo sweet.
ReplyDeleteWe are praying for HEALING and guidance for you and the doctors. PRAYING!
We are praying so hard for healing and peace as you travel this road. May God's Hand be on you both.
ReplyDeleteShe is so sweet and in such great hands...I am praying for her health and for tremendous healing!
ReplyDeleteShe is precious. Praying!!!
ReplyDeleteI'm a Holt Ethiopia adoptive mom.....Praying for you and your sweet girl!
ReplyDeleteLisa H.
thinking of you and sweet little Eden....praying hard
ReplyDeleteWanted to chime in here and let you know we are praying for Eden!
ReplyDelete