Saturday, February 5, 2011

Hope

The geneticist just came to look at Eden. He had been puzzling over her charts, so he came to examine her. He also talked with the neuroopthamologist who saw her in November, because his findings indicated nothing pointing to a leukdystrophy. He watched her with me, asked me questions, and examined her. He said if her Krabbe test comes back positive she must have an atypical form. She couldn't hold anything in her hands when we came in, couldn't hold up her head at all. When he examined her, she grabbed his stethoscope, told him what the puppy says, told him thank you, gave him five, blew kisses. He said she shouldn't be at all better.

He also said her mri could be from malnutrition.

He said she is a mystery, and he will keep looking for what could be going on.

So keep praying! A mystery that is improving is a good mystery!
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14 comments:

  1. Bethany and IsaacFebruary 5, 2011 at 12:28 PM

    Oh, I hope this doctor is right! PTL for HOPE anyway! I'm still praying like crazy!

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  2. UnknownFebruary 5, 2011 at 2:03 PM

    Oh Praise the Lord. I'm glad to hear she is doing better! We are praying!!!

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  3. TerraFebruary 5, 2011 at 2:27 PM

    Just wanted you to know that i'm praying for your sweet baby girl :)

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  4. UnknownFebruary 5, 2011 at 2:36 PM

    i was thinking something similar...i researched a little Karbbe...and it seemd to be so deteriorating...but she seems to get better and make improvements (even if she the regresses due to being sick/not eating)...so it seems to me like it must be something else....hopeing and praying with you guys

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  5. DeeFebruary 5, 2011 at 4:30 PM

    What wonderful news...we're going to keep praying...hope that the Krabbe test comes back negative...that all of this is something that can be taken care of with good nutrition and lots of love!!! Love you! Aunt d

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  6. AnonymousFebruary 5, 2011 at 5:47 PM

    If you do end up at Duke, feel free to call me. I don't know you, but I am a mother to three children, including two from Ethiopia.

    I would be happy to help in any way possible.
    Sincerely,
    Sarah
    sarahcteacher@yahoo.com
    (919) 552-5637

    I'll be praying for you and your beautiful daughter.

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  7. "Are These Kids All Yours?"February 5, 2011 at 6:10 PM

    OK I am jumping up with EXCITEMENT!!!!!!!!! PRAYING PRAYING PRAYING PRAYING!!!!!!!! God can do ALL THINGS- MIRACLES & THE IMPOSSIBLE are HIS SPECIALTY!!!!!!!!!! Come on EDEN!!!!! :)

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  8. BethFebruary 5, 2011 at 6:57 PM

    Hi Beth. I am a fellow adoptive parent (my princes born in Korea; my princess in Ethiopia). My travel buddy, Julie, at 7900miles, alerted me to your daughter's battle. Please know that you and Eden are in our family's prayers. Hoping for continued good news. Beth in Iowa

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  9. KatFebruary 5, 2011 at 10:17 PM

    Ohhh! Praying for complete healing! God's hand is SO on you and we will continue to petition for Eden and also for you peace.

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  10. GeorgeFebruary 6, 2011 at 11:00 AM

    Improvement, even if it is a mystery, is wonderful...I hope the team of doctors gets to the bottom of what's happening in her little body. Continuing to pray...

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  11. LauraFebruary 6, 2011 at 12:08 PM

    What good news! We'll continue to pray!

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  12. JulieFebruary 6, 2011 at 12:55 PM

    Great great news! Our church family prayed for you both this morning and praised God for this hope. Keep us updated!!

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  13. TammyFebruary 8, 2011 at 6:36 AM

    Praying for you and your beautiful little girl.

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  14. ErinFebruary 8, 2011 at 8:07 PM

    Yeah!! Such good news. Praying for negative test results.
    Erin
    Another Holt momma

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