We start round 2 of testing tomorrow for a different leukodystrophy. Please pray the urine sample does not show high amounts of sulfatides, and that her DNA test shows no abnormalities. And please continue to pray for her brain to heal.
We are still in the hospital, and still not sleeping. Eden is getting a cold--we really need sleep!!!
Eden has now gained almost 2 lbs! And she is learning to use a sippy cup in speech therapy hoping it will encourage her to drink.
Thank you for you prayers!!!!
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WOW!!!!! With weight gain like that you've about passed us up!!!! Wonderful!
ReplyDeleteLove the weight gain....not the sleep loss....PRAYING for those tests and for COMPLETE HEALING!!!!!!!!!!!
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