Eden has been officially diagnosed with Metachromatic Leukodystrophy.
Here are some specific prayer requests:
Please pray for her healing.
Please pray she will be pain free and able to sleep. She can't sleep more than an hour at a time, and the doctor thinks it's either muscle spasms or nerve pain.
Please pray for those doing research. MLD is so rare, research has only been done for about 12 years. Which is a huge reason there is no treatment or cure.
Please pray that I will have wisdom to make the best decisions for her.
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Praying for you both right now.
ReplyDeleteContinuing to pray
ReplyDeleteYou have our prayers for your dear sweet Eden, and for you as you care for her. We will pray for no pain, for peaceful sleep and for treatments and healing. Hugs to your beautiful girl!
ReplyDeleteBeth, we prayed tonight in class for you and her...for her healing...love you!
ReplyDelete